Dialysis care options developer Baxter Asia Pacific has rolled out a web-based useful resource portal to assist sufferers dwelling with power kidney illness in Indonesia.
The My Kidney Journey web site hosts info on CKD, similar to signs, causes, and levels, in addition to the newest info on a number of therapy choices to handle the illness, together with Peritoneal Dialysis at dwelling, in-centre dialysis care, and kidney transplant.
The portal additionally offers sufferers, households and caregivers insights on methods to reside nicely on dialysis, similar to dealing with emotional difficulties of analysis and calls for of therapy.
WHY IT MATTERS
The repository on CKD sources can’t come any sooner as circumstances of the illness is growing inside APAC, Baxter claims. Specifically in Indonesia, CKD stricken over 185,000 sufferers in 2019 with about 69,000 new circumstances being recorded annually and rising, based on the Indonesia Renal Registry.
Dr Aida Lydia Sutranto, guide nephrologist at Dr Cipto Mangunkusumo Hospital in Jakarta, confused that the lack of understanding “causes patients to be unprepared for kidney replacement therapy and confused in choosing the appropriate treatment modality”.
The web site has been launched in 10 APAC international locations and in 9 completely different languages.
THE LARGER TREND
In July final 12 months, pharmaceutical large Otsuka launched the same platform referred to as NephU which offers a bunch of on-line sources about nephrology situations, together with video, audio, webinars and podcasts. The web site additionally connects clinicians with each other and with sufferers to allow collaboration and data sharing.
Meanwhile, one other APAC-wide web site was not too long ago launched to supply studying sources on osteoporosis. The Asia Pacific Consortium on Osteoporosis crafted a 17-module collection referred to as Health Care Professional Peer-to-Peer Educational Modules which includes a large academic slide deck comprising 231 slides. The organisation goals to equip osteoporosis professionals throughout the area with info, supporting knowledge, topical literature summaries and greatest apply examples.
ON THE RECORD
“There is no one-size-fits-all model for managing CKD. However, we hope that My Kidney Journey will provide patients with the knowledge and resources they need to plan for a healthy and full life while on dialysis or other CKD treatments. Aside from patients, we hope that this new online portal can be a platform that offers support to caregivers who are supporting their loved ones to adjust to life with CKD and their own personal journey,” stated Baxter Asia Pacific President Andrew Frye.